Baby Blake was born on August 17th, 2012. He was home with his family for a week and a half when he became very sick.
On August 29th, his parents, Tracey Purdy and Dean Simmons of Seneca Falls, both are former Wayne County residents, took their baby to Geneva Hospital when he was later transferred to Strong Memorial Pediatric ICU. It was there that Blake was diagnosed with Non-compaction Cardiomyopathy. This is a rare congenital heart defect that effects the muscle development of the heart. Due to its recent establishment as a diagnosis and rarity, research and treatment is very limited.
Baby Blake was put on a ventilator and a managed plan of medications. Doctors at Strong tried many attempts to get Blake’s heart to improve, but it was determined on September 6th, that his heart is too weak and damaged to function on its own. He needs a heart transplant to survive. After getting the conformation that a Heart Transplant is Blake’s only option, Tracey and Dean were told that he would be transferred to Mount Sinai Hospital in New York City to await the transplant as soon as a bed was available for him. A few hours later, they were notified that Baby Blake would be transferred to NYC the very next morning at 10 am by airplane ambulance.
On September 19th, Blake was the youngest patient to ever be put on the Heart Transplant list.
That has all happened in about one week’s time. Tracey and Dean have barely had time to process what has happened let alone make arrangement for their affairs. Aside from Blake, Tracey has a 10 year old son. She had only one evening to spend with him and explained as much as he could understand. She had to tell him she had to go to New York City in the morning to be with Baby Blake. It was the hardest decision a mother would have to make, to leave one son behind to help another.
Dean is not able to be with Tracey and his first born son, due to having to work to keep his family financially afloat. Tracey is hours away from her friends and family with no idea where anything is. Dean will visit as often as possible, as travel is expensive.
Tracey graduated from North Rose Wolcott, and Dean from Clyde Savannah. Family are still in the Wayne County area.
If you want to help with a donation, there are two web pages set up at this time: Go to https://www.wepay.com/donations/baby-blake_1, and http://www.indiegogo.com/baby-blake.